ZAP (ICD SUPPORT) GROUPS

This fine collection was first compiled and donated to us by our friend, Delos. 
If your group is not listed below, please tell us about it:  Duffey@ZapLife.org

HOSPITAL
& CITY

CONTACT PERSON &
MEETING INFORMATION
PHONE
NUMBER

ONLINE

OFF SHORE
(ICD CRUISES)

ALABAMA

Baptist Montclair
Birmingham, AL
Check out the web site at:
http://www.cvapc.com/
205-599-6394
Springhill Memorial Hosp.
Mobile, AL

We are finally able to offer an ICD Support Group in Mobile!

Our first meeting in April was a huge success with great turn-out. Subsequent meetings are scheduled for this year at the Springhill Hospital Conference Center on July 20th and October 19th.We will meet at the Springhill Conference Center on the Beltline.

Contact person is  Jill Street, RN.
cardiacnrs@aol.com

We are asking for reservations to be made at least for the first few meetings so we can know how many to feed. We are also advertising in the area.

334-435-8525

CALIFORNIA

Eureka Senior Resource Center
1910 California St.
Eureka, California
The Eureka, CA ICD Support group meets on the
Third Tuesday of the month.

Also, we have adopted the name: BeatNiks.
Email: bsully@inreach.com
(707)444-3719
Regional Cardiac Arrhythmia Center
Scripps Memorial Hospital
La Jolla (San Diego), CA
Organizer: Sherie Whiting, RN,MN
Director: Steven L. Higgins, MD
email: EPdoc@aol.com
Meets Quarterly
619-658-0088
619-658-0084 F
Loma Linda Univ. Med Center
11234 Anderson St.

PO Box 2000
Loma Linda, CA 92354

Pamela Timothy MS, RN, CS, NP
email: ptimothy@ahs.llumc.edu

909-558-4652
F 909-558-0390

Good Samaritan Hospital
Los Angeles, CA

Beverly Firth, RN, MN
bfirth@goodsam.org

213-977-4176

UCLA Medical Center
10833 Le Conte Ave.
Room 47-123 CHS
Los Angeles CA 90095-1679
Coordinator: Luci Kadota, RN
EP Co-Directors: Zenaida Feliciano, MD & Noel Boyle, MD, PhD

The meetings are three times a year, and UCLA patients also receive a newsletter announcing the next meeting.  The meetings are usually on Wednesday evenings and dinner is provided. 

Patients can contact me at the number below for further information or the ICD clinic may also be contacted at 310-794-1707 regarding meetings and getting on the mailing list for the newsletter.

Email: jlee@mednet.ucla.edu
310-794-1707
310-206-9133 F
Huntington Mem. Hospital
Pasadena, CA
Susan Smith, RN 626-397-3315
O'Connor Hospital
San Jose, California 95128-1471
Linda Gordon, RN
garlind@gateway.net
2105 Forest Avenue
ICD Support Group meets the third Tuesday of every month from 2:30 to 4:00 p.m. in Cafeteria Dining rooms A&B.
Light refreshment, No charge
(408) 947-2500
x2120

CONNECTICUT

Hospital of St. Raphael
1450 Chapel St.
New Haven, CT
WE MEET ON THE 3RD MONDAY OF EACH MONTH, 5:30 TO 7 PM, IN THE HOSPITAL CAFETERIA.


LORI MURRAY, SOCIAL WORKER, IS THE CONTACT PERSON

(203) 789-3401
Danbury Hospital
22 Hospital St.
Danbury, CT
WE MEET EVERY OTHER MONTH,  (JANUARY, MARCH, MAY, ETC) FROM 6 TO 7:30 PM, IN THE CAFETERIA CONFERENCE ROOM, ON THE FIRST TUESDAY OF THE MONTH

.GEORGIANNA JONES, RN IS THE CONTACT

(203) 731-8627

FLORIDA

Morton Plant Mease
Clearwater/Dunedin, FL
ICD group meets the third thursday of each month from 7pm to 9pm. at Countryside Mall 

813 462-7208 1-800-462-0077 ext 27208.

Holy Cross Hospital
Ft. Lauderdale, FL
South Florida ICD Support Group (since 1989)
Meets at Holy Cross Hospital, Ft. Lauderdale
Contact: Linda Vardeman RN
Director: Richard M. Luceri, M.D.(Florida Arrhythmia Consultants)
Meets on the first Monday of alternate months (5pm-7pm): June, Aug, etc.
954-772-1080
The Watson Clinic, LLP
Lakeland , Florida
Debra McKinney, RN.
The ICD group meets quarterly on Tuesday at 5:00 pm in the 1st floor Medical Library. The date is not predetermined. Please call for date. Light refreshments.
No charge.
941-680-7452
Orlando Heart Center
60 W. Gore St.
Orlando, FL 32806
Maggie Wolford 407-650-1315
Florida Hospital
Orlando, FL
http://www.flhosp.org 407/897-1575
Bayfront Med. Center
St. Petersburg, FL
Sherry Bucko
Bayfront ICD Support group meets second week of every other month in the BMC Steen Conference Center Sun Coast Medical Building
2nd floor conference room
email: NurseBucko@aol.com
813-893-6424
University Community
Tampa, FL
Cindi Sullivan 813.979.7419

GEORGIA

St. Joseph's Hospital
Atlanta, GA

Sharon Hornecker
shornecker@sjha.org 

404-851-7025

Emory Health Care
Atlanta, GA

 

Please call Nancy or Chinti Bali with any questions. Nancy Romieko
nancy_romeiko@emory.org
Meets Quarterly
 

1-800-472-3697
404-778-5937

IDAHO

Boise, ID
Idaho Cardiology Associates
Contact persons: Becky Robertson, R.N. & Irene Boyle R.N.

Name of our group is the Ticker Kickers.  Meet every other month @ St. Luke's Regional Medical Center.  All patients, families and friends are invited.  Lunch provided free. Annual picnic.

1-800-390-5689

ILLINOIS

Northwestern Mem. Hospital
Chicago, IL
 

312-908-5310

Illinois Masonic Medical Center
836 W. Wellington
Chicago, IL   60056
Catherine_Dunnington@IMMC.org

773-296-7135

Good Samaritan Hospital
Downers Grove, IL
  708-275-4378
LaGrange Memorial Hospital
5101 S. Willow Springs Road
LaGrange, Illinois

West Suburban Cardiologists

http://www.westsubcardiology.com/

Roselle Baran, RN BSN CCRN

Kryss O’Donnell, RN MS
Mary Toon, RN Director Highland Pacemaker Clinic

 
Carle Clinic
Urbana, IL
"Live Wires" ICD Support Group
         Coordinators: Marilyn A. Prasun R.N., M.S.
   & Julie Purcell R.N.
   Meetings are held: @ Carle Foundation
   Hospital, with a educational session followed by
   a social time of sharing.

mprasun@springnet1.com
217-383-3210

INDIANA

St. Vincent Hospital
Indianapolis, IN

Contact:   Patti Vaughn, RN
Electrophysiology Lab
8333 Naab Rd.
Indianapolis, IN  46260
email:    PLVaughn@stvincent.org

Our clinical director is Dr. Eric Prystowsky.  Our support group meets in April and October, and we are approaching our 10th anniversary.

(317) 338-2501

IOWA

Genesis Medical Center
1227 E. Rusholme
Davenport, Iowa  52803
I am in the process of starting a support group for the Quad Cities area.  Hopefully, the first
meeting will be in October.

e-mail: mailto:tmtywanda%20@aol.com
Therese Devlin, B.S.R.T.(R)

563-421-6709
Cardiac Cath Lab

KENTUCKY

Green River Heart Institute
Owensboro, Kentucky 42303
contact person
    Lisa Lowe, R.N. CCRN
270-688-0808

LOUISIANA

West Jefferson Medical Center
1101Medical Center Blvd.
Marrero, LA  70072
COORDINATOR:  JACQUELINE OWEN,RN
EP DIRECTOR:  JAMES MC KINNIE,MD

The meetings are held four times a year, and local patients with devices are mailed an announcement.  The meetings are held in the hospital on Wednesdays
usually at 10am.

Patients or interested family members can contact Jacqueline Owen, RN at (504)349-2318 or by pager (504)349-3840 regarding meetings and getting on our mailing list.
504 349-2318

MAINE

York Hospital
15 Hospital Drive
York, Maine 03909

Meets the third Thursday of each month and alters the location between York Hospital and The Heart Institute in Newington, NH. The odd months it is held in Newington and the even months in York. We start at 1 PM and try to get out at 2 PM. We offer a wide range of topics over the months. York Hospital has an ICD implant and follow-up clinic where we currently follow 57 patients with a wide variety of ICD devices.

Lona Davis, RN is the primary contact person at York Hospital.

Our electrophysiologists are Lawrence J. Petrovich and David Cunningham. Dr. L.J.Petrovich has been implanting ICD's since 1992. Dr. D. Cunningham just joined the practice from Lahey Clinic in Burlington, MA. Both doctors are in the Seacoast Cardiology Ass. group that covers York, Maine, Portsmouth, Newington and Dover, NH.


We offer open attendance to any support group meetings and frequently have people with ICD's that are visiting the area or followed by other clinics attending, as well as family members.

207-351-2424

MASSACHUSETTS

Boston, MA Longwood Medical Area ICD Support Group
a collaborative effort between Brigham and Women's Hospital and Beth Israel Deaconess Medical Center in Boston, MA.
Quarterly meetings (evening) with a speaker followed by an open forum for discussion.
Dinner served, complimentary parking, no fee
Spring Dinner Cruise on Boston Harbor
contact Julie Shea, RN, MS for details.
JBSHEA@BICS.BWH.HARVARD.EDU
617-732-6957
Fall River, MA

An ICD support group known as RHYTHM BOX BUDDIES has been in operation for approximately 10 years.   The group meets monthly at either
Charlton Memorial Hospital or St. Anne's Hospital in Fall River, MA.
Organizer and contact person is Anita Soares RN, Cardiology Associates,  829
SoMain St., Fall River, MA.

(508) 675-0369

MICHIGAN

U of M Hospital
Ann Arbor, MI
Theresa Davidson 313.936.4025
St. Joseph's
Ann Arbor, MI
Sue Honoway 313.434.6330
Henry Ford Hospital
2799 W. Grand Blvd
Detroit, MI 48202
Theresa Cirocco RN, BSN
Jackie Parker RN, BSN
Ph. 313-916-2417

Judy Lehmann RN, BSN
Joan D. RN, BSN
Kathy Bizek RN, NP
Ph 313-916-7690

email: tcirocci@hfhs.org
Meeting times: On Hospital Campus,

Quarterly, 2nd Thursday in
Nov, Feb, April, and August
313-916-8416
FAX
St. John
Detroit, MI
Julie Fresard 313.343.7327
McLaren
Flint, MI
Carol Higgins 313.762.2000
Butterworth
Grand Rapids, MI
Cindy Price 616.459.4345
Spectrum Health
1840 Wealthy St SE
Grand Rapids, MI  49506
Jackie Oliai, RN, MSN  (contact person)
The Group meets the second Tuesday of every month from 7:00 pm - 9:00 pm. It is free and open to all ICD members and their families. 
616-774-7671
800-348-3987
Northern Michicgan Hospital Jennifer Jones 616.347.7000
Borgess
Kalamazoo, MI
Donna Thurn 616.373.8070
Michigan Central
Lansing, MI
Denise Grimes 517.483.7551
William Beaumont
Royal Oak, MI
Linda Griffin 313.551.3116
Providence Heart Institute
Southfield, MI
Keith Puitz EP tech
Meets every two months
The coordinator is
Christian Machado, MD
(248)424-2000

MINNESOTA

Minneapolis Heart Institute
Arrhythmic Clinic
Minneapolis, MN
milst001@maroon.tc.umn.edu
(adult electrophysiology)
dunnigan@maroon.tc.umn.edu

(pediatric electrophysiology)
612-863-3861
1-800-582-5175

MISSOURI

Metro Heart Group
12700 Southfork Rd Ste 155
St. Louis, MO 63128
Nancy Lee, RN

email: nlee@metroheart.com

314-842-0602
F 314-842-4372

NEBRASKA

The Cardiac Center of Creighton University
Omaha, NE
"The Jumpstarters"
Vince Huebert
vhuebert@cardiac.creighton.edu
Timothy Ryan, RN
Manager, Arrhythmia Services
The Cardiac Center of Creighton University

trryan@cardiac.creighton.edu
 

NEW JERSEY

Deborah Heart and Lung Center
200 Trenton Road
Browns Mills, NJ 08015

Zapper Club
Contact Person: Nell Kapeghian, MSN, RN
KapeghianN@Deborah.org
Meets every other month at Deborah
Meeting agenda includes group sessions and educational presentation.
Newsletters published quarterly
Contact Nell Kapeghian if you would like to be on our mailing list.
Anyone with an ICD is welcome.

609-893-1200
ext. 5618 or 5258
Hackensack Univ.  Med Center
30 Prospect Ave
Hackensack, NJ 07601
Sandra Dillon, RN 201-996-2287
F 201-996-2571
Morristown Memorial Hospital contact:  Steve Winters, MD
973-971-5000
ask for Dr. Winter's Office
Newark Beth Israel Medical Center contact:  Donna Neglia, RN
email:  donneg@aol.com
973-926-7502
Valley Hospital
Ridgewood, NJ

Jonathan Steinberg, MD
Electrophysiologist

201-447-8000

NEW HAMPSHIRE

Dartmouth Hitchcock Medical Center
Lebanon, NH
ICD Support Group
meets three times per year and discusses a variety of heart related topics.
contact person: Carol Zalinger, RN
Email: Carol.Zalinger@Dartmouth.edu
603-650-6112

NEW YORK

St. Peter's Hospital
315 South Manning Blvd.
Albany, NY 12208
ICD Wellness Support Group
Facilitator: Linda Wagenknecht RN
Co-Facilitator: Stacey Simeon RN BSN
Meets quarterly. Provide information on a variety of cardiac related issues at each meeting. Annual ICD Picnic.

EMail: LindaWagen@aol.com
1-800-heart-76
University Hospital at Stony Brook
Long Island
Hello! My name is Terry Leonard and I am one of two coordinators for our support group. We run a support group for our patients quarterly at 14 Research Way, in Technology Park, Stony Brook, New York. It's held on Monday eves 7-9pm, with tech support from Medtronics and Guidant. We also provide education. Please contact me or Virginia Dignam. 631-444-7234
St. Luke's-Roosevelt Hospital Center
1111 Amsterdam Ave
N.Y, N.Y 10025
Julie A. Philip P.A    Arrhythmia service manager

Our ICD support group meetings are usually held every three months.  Please call if you need any further information of assistance.

212-523-4017
F 212-523-3195
SouthBay Cardiovascular
Associates
West Islip, New York
The Beat Goes On   is a support group open to anyone interested in sharing and receiving information about internal cardiac defibrillators. The group meets every other month from 6pm to 8pm at the Bayshore/Brightwaters ambulance exchange. Contact MaryAnn DeFalco RN for further information. 631-669-2555

NORTH CAROLINA

Asheville Cardiology Associates
PO Box 7239
Asheville, NC 28802
Debbie Jones, RN
Meeting Since 1/93
Meets Monthly.
828-274-6000

OHIO

Akron General Medical Center
Akron, Ohio
The contact person is Judy LaBarba .  We meet every other month on the second Monday from 6:30-8:30 P.M. (330) 384-6011
Ohio State University Medical Center
Columbus, OH
The location varies, but is held quarterly.
Contact The Arrhythmia Device Service at
OSU Medical Center
Janet Collins, RN
614-293-8916
North Ohio Heart Center
Elyria, Ohio
Contact:  Donna Humphrey
Greg Friedman

Greg is the editor of the newsletter for the Elyira Memorial Hospital/ North Ohio Heart Center AICD Support Group.
thefriedmans@mediaone.net

440-329-7600
440-984-2053
Toledo
Toledo, OH
Linda Hutchenson 419.471.4000
St. Vincent's
Toledo, OH
Joyce Morris 419.321.2761

ONTARIO (Canada)

Hamilton Health Science Corp.
237 Barton St.
Hamilton, ON L8L 2X2

Organizer:  Ceri Gibbs, RN
ICD nurse
    

(905) 527-4322
ext. 4887

OREGON

Portland, Oregon
Providence & St. Vincent Hospitals

Polly Luthro, RN
  polly_luthro@phsor.org

Site alternates, call for info.

1-800-765-4261

PENNSYLVANIA

Abington Medical Specialists
1235 Old York Road,
Suite 222
Abington, PA  19001
Contact person: Jon Klenk, RN or Fran Hoffman, RN

Meeting Schedule/Dates/Location: varies - invitations mailed to our patients & posted in our office.
Call for info.

215-517-1000
Fax: 215-517-1049
Altoona Hospital
6th Floor Meeting Rooms
620 Howard Avenue
Altoona, PA  16602
Kim Koehle, RN
kak263@aol.com
chuck.seighman@medtronic.com
814-946-2108
Lancaster General Hospital
Lancaster, Pennsylvania
Cherie Tannehill, Electrophysiology Services
email CTTanneh@LHA.org

The group is called "The Zapper Club" and we usually meet about 4 times a year, offering either breakfast or lunch, a "get to know one another" session, then we try to get speakers in from different walks of life, that may affect our folks, i.e., pharmaceutical companies, ICD and pacemaker vendors, people that discuss healthy eating and exercise, etc..
(717) 290-5151
St Mary Medical Center
Langhorne, Pa. 19047

Zapper Club formed in March 1999.  Members meet quarterly for educational and psychosocial support. Our electrophysiologists (electrical heart doctors) each speak to the group about topics that increase understanding of the ICD (implantable cardioverter defibrillator).

In addition, our clinical psychologist, Dr Marc Duome, conducts small group sessions as a forum for discussing your thoughts and feelings about living with an ICD. These sessions are held monthly and immediately following the quarterly meetings.

Contact person: Tony Day, RN
(MacroT1088@aol.com)

215-750-2235
The 2nd Chance Support Group
Associated Cardiologists
Mechanicsburg, PA
Electrophysiology Nurse: Jennifer Conrad, RN, BSN
David Scher, M.D.

Our group meets quarterly. We usually meet in the afternoon with light refreshments and we invite people to speak about subjects that affect patients with ICDs.
We send out a newsletter every three months.
717-697-3304
Hahnemann University Hospital
M. S. 470

230 N. Broad Street
Philadelphia, PA 19102-1178
Contact Person:  Desiree Soto, RN
Clinical Cardiac Electrophysiology
        


Newsletter Contact:
Maureen & Stan Kochanek
Village Greenes
11 Lavender Court
Marlton, NJ 08053-5538
(856)  810-9437
Please Note:  We submit a newletter 3 times a year, have an active support group, and we organize annual ICD cruises where an EP doctor and nurse accompany us.   PLEASE LET US KNOW IF YOU'RE INTERESTED IN BEING PLACED ON OUR MAILING LIST!!!
(215) 762-3457
Reading Hosp. & Medical Center
Reading, PA
I run an ICD lecture series for patients and a member of their family or friend.  We meet quarterly in The Reading Hopsital and Medical Center Education Rooms.  I am the EP nurse coordinator for Cardiology Associates of
West Reading.  My name is Robin White, RN. .  My
e-mail address at home is rmossw@hotmail.com
610-375-6565
The Lankenau Hospital
100 Lancaster Avenue
Wynnewood, PA  19096
ICD Support Group
Contact People include:
Mary Alice Roth, R.N.
610-645-8581
Carolyn Aldrich
610-649-7625
Diane Nachamkin, R.N.
610-527-1165
The group includes patients from three cardiology/EP groups that work at The Lankenau Hospital but anyone is more than welcome to join us.
 
York Hospital
York, Pennsylvania
Contact:  Ann Moehlman, R.N.
e-mail:  cd_amoehlman@yorkhospital.edu

ICD support group meets quarterly.

Call for dates and times.
(717) 741-4690

SOUTH CAROLINA

Medical University of SC
171 Ashley Ave
Charleston, South Carolina
A new group for Pediatrics
Sherry Taylor RN, BSN, Ped Cardiology
803-792-8580
Medical University of SC
171 Ashley Ave
Charleston, South Carolina
c/o Cardiology
Dr. Nancee Sneed RN PHD
College of Nursing
This is an adult group. They meet monthy on Mondays prior to clinic.
The patient group contact person is
Gay Pardee
sneedn@musc.edu   

803/792-0683

Greenville Hospital System
Greenville, SC
Debby Greenlaw, NP-C
1st Thursday @ Life Center
(864) 240-8132

TENNESSEE

Methodist Hospital
Memphis, TN

Linda Porterfield, PhD

(901) 274-2643

TEXAS

Baylor Hospital
Dallas, TX

JoAnn McKethan, R.N.
Pacemaker EP Lab
Baylor University Medical Center
No e-mail or web address as yet.

214-820-2241

Hermann Memorial Hospital
Houston, TX

Sheryl Murphy RN, FNP
EP Nurse Practitioner and Research Coordinator
6th floor boardroom,  Cullen Pavilion
1P - 3P -  3rd Wednesday of
 Jan/Mar/May/Sep/Nov

 

 713-500-6590

VIRGINIA

Riverside Regional Med Center
500 J. Clyde Morris Blvd
Newport News, VA 23601

Cathy Saunders

Meeting times:  3rd Tuesday every other month

Ph 757-594-2291
Fax 757-594-2303

WASHINGTON

Providence General Medical Center
1330 Rockefeller Ave,
Everett Wa 98201
Contact person-Teresa Altman Rose, R.N.
Group name    -Precious Joules

email address -preciousjoules@msn.com

We meet quaterly in the medical office building next to
the hospital.

425-261-4910
F 425-261-4911
Longview, Washington Polly Luthro, RN
polly_luthro@phsor.org 

Location varies for info, contact  Polly
1-800-765-4261
Deaconess Medical Center
Spokane, WA
Contact: Gayle Terry, RN

They meet several times a year, have various speakers and an annual Christmas party.
509-458-7248

WISCONSIN

INSTITUTE FOR CARDIAC RHYTHMS
Aurora HealthCare
St. Luke's Physician Office Building
2801 West Kinnickinnic River Parkway #430
Milwaukee, Wisconsin 53215-3606
Email ahcheart@execpc.com
1-888-526-7555
1-414-385-2385
FAX 1-414-385-2355
The Marshfield Clinic
Madison, WI
"New Rhythm Heart Club."
This support group meets several times per year, usually quarterly, and has a gala picnic usually in late September.  This year it will be in Marathon Park in Wausau, Wisconsin.  Please contact Cheryl Bores, RN concerning questions at the Marshfield Clinic or contact Peter N. Smith, MD, FACC, Cardiac Electrophysiologist, Marshfield Clinic, Clinical Assistant Professor of Medicine, University of Wisconsin Medical School-Madison.
SMITHPN@MFLDCLIN.EDU
(715) 387-5049

SCOTLAND

Ayr Hospital, Glasgow the Implanted Defibrillator Association of Scotland, a group for all Scottish ICD patients. 

We are a patient led support group with charitable status. Because of geography we only hold one general meeting per year at Glasgow Royal Infirmary, Glasgow, Scotland. 

Regional Groups meet two to three time per year at Ayr Hospital, Glasgow, Inverness and Aberdeen. We publish a Newsletter - 'Vital Spark' - four times a year. We produce leaflets  entitled "So I have an Implanted Defibrillator - what now?", "Driving", "Mobile Phones", "Holidays", "Advice for family and friends", "First aid" and one about our association. We offer befriending, advice and hospital visits to meet new cases. We also subsidise mobile phone use to encourage independence. Contact with and visits from other individuals and groups would be welcome.

As a Group we cover the whole of Scotland drawing members from the two Cardiology units in Scotland that implant defibrillators, namely Glasgow Royal Infirmary and the Royal Infirmary of Edinburgh. We hold one annual country wide meeting and several Regional meetings, we also publish advisory leaflets and a quarterly newsletter. We provide a listening ear to any one, implantee or other about problems of ICD life and we also help with mobile phone costs which we find helps re-build confidence in first timers.

We would welcome contact with anyone who would wish it.   

Contact us through me, Peter Slater, 28 St. Andrew Street, Brechin, Angus, U.K. DD9 6JL. Tel +1356 622554, or e-mail mailto:peisoslater@themail.co.uk
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